Thursday, December 4, 2025

in a time of monsters

I just saw a video
that caught me up
& they were showing a clip from newsmax
saying WAR CRIME

I think it was jimmy kimmel 
showed a clip of h*gs*the in 2016 talking about 
not following 
ILLEGAL ORDERS
& CONSEQUENCES of war crimes 

SO
you KNOW he KNOWS 


goodnight sweetheart 
I LOVE you VERY much 

Wednesday, December 3, 2025

whew

I guess whatever I did yesterday 
WORKED
when I got there
TODAY 
she was sitting up on the bed

& she said she went to the bathroom twice in the night with the walker

I didn't mention it yesterday, but she called her friend marian & got her all worked up 
TEXTING me 
CALLING me
when I'm already on the way

& I'm LIKE 
not responding 
NOT being wound up 

& I KNEW today
she had talked to her trainer 
& wanted her to come by
"to assemble the foot pedal thing"*

which didn't make any sense 
BUT 
then she told me LATER that as her trainer was a surgical nurse she could assess whether she needed to go to the hospital 

& I'm LIKE 
oh no
she's calling in reinforcements

BUT 
when she got there
my mom was in the bathroom 
SO
I got to talk with her
FIRST

WE 
were on the same page 
& she totally backed my agenda 

SO
MORE walking with the WALKER 
I took batteries for her
blood pressure 
thing-y**

it was normal 
after I made her stand up from the bed
five times 
I took her oxygen 
& it was 💯
I've never 
SEEN
her oxygen go over ninety seven

she was petulant and uncooperative 
BUT 
she did okay 

& we talked about mortality 
& the surgery 
& while I'm not naive enough to think 
she's completely engaged with the 
REALITY
of all THAT 

she didn't just check out either

I'm not sure 
but I think I made progress today 




*which she's had for months unused -- the "assembly" turned out to be plugging it in and putting batteries in the remote 

**I was afraid she might have low pressure 

good morning

I've got THAT song in my HEAD 
as I woke up and since 
I'm having a hard time regulating
& I'm KINDA scared


I LOVE you VERY much sweetheart 
I hope you are having a beautiful day 🫶 

shoulda BEEN SLEEP thoughts

she's anemic 
her doctor prescribed her 
IRON
she isn't taking 

she hasn't got a lot of pep at the best of times

BUT 
pulling herself up 
OFF the BED
& standing 
up to two minutes 

her oxygen went down IN the ACTION 
when oxygen is USED 
then immediately 
BACK up
to as high as ninety seven

& her GET UP, I can honestly say
OUT--PERFORMED
BASELINE 

I think the bed's a little 
EASIER height
but I'll take it 

I'm not dissuading her from going to the hospital 
I'm saying 
SHE
has to call nine one one
or something 

because I can't lift her into the car



Tuesday, December 2, 2025

this either

she has been to the doctor 
a BUNCH 
she doesn't feel good 

she wants them to tweek her meds

she likes the
ATTENTION 

I just kept myself away 
NOW
she's suddenly 
in a health
CRISIS

but she's got the surgeon visit 
if she had to go to the
HOSPITAL 
OR
if she can't
MOVE

she won't make the appointment 
BUT 
it was fate or whatever 
& SHE didn't have 
to CHOOSE 

& I GET
SOMATICS 

BUT 

PRAISE 
was 
MOTIVATING 

I don't know what to call this

I've processed a little more 
I had a little win
I think 

I'm LIKE 

OK
sit up
GOOD!
OK
stand up*
GOOD JOB!!

*hold onto the walker


ugh

I'm having a hard time 
decompressing

TODAY was ROUGH 

TODAY I got

I love you SO MUCH 
I WISH you loved ME
&
I'm sorry
YOU
THINK
I'm argumentative 

& I'm LIKE 
NOT 
you're sorry for being argumentative 

you're sorry 
I THINK you're argumentative 

YES, she says

well you didn't have a personality change 
(whatever else might be wrong)


I LOVE you VERY much sweetheart 🫶 
I'm so grateful for your light

I shoulda BEEN SLEEP

I've gotta go to sleep 
I WANT to drive up the coast
I WANT to
I was really hoping 
I could somehow 
BUT 
I can't 
& I don't know if that was obvious
because of the mental
STATE of ME
or if
it seemed like I might pull it off

BUT 
I don't want to 
finesse it all around 

I badly wanted to do the WHOLE thing 

& I'm unhappy about not
& maybe I'm letting you down 
BUT 
I can't 
I can't do the whole thing 
& I don't think 
ANY of it looking LIKELY 
this time 

& ALL the FEELS
I FEEL 
saying that

I LOVE you VERY much sweetheart 
goodnight 

other stuff in my HEAD

I've also had some other songs 
popping up at odd moments 

these are the days of miracle and wonder
this is the long distance call
the way the camera
follows us in slo-mo
the way it looks to us all
the way we look to
a distant constellation 
that's dying in the corner of the sky
these are the days of miracle and wonder 
don't cry baby
don't cry
don't cry 
don't cry 

which could be THOSE lyrics 
OR 
something from that TIME 
OR
I don't know 
BUT 
I'm not 
MAD
at it

&
edelweiss 
which could be 
multiple things, but MIGHT be 
from my childhood 

when my mom picked me up for every other thursday visitation 
we ALWAYS 
went to memorial city mall 

in the mall was this 
cuckoo clock place -- I can't remember what it was called -- and they had this music box

it was red --  maybe leather
& it had --  maybe julie andrews -- twirling
to edelweiss 

& I loved it
& went to visit it
every other thursday 

& my mom was working it pretty hard -- maybe 
trying to get me to the point where -- maybe 
I would leave my dad -- maybe 

SO
NOW
when I hear the song 
I keep trying to remember 
WHAT she DID 

when we went to visit it
& it had been 
SOLD
& it was GONE

& I cried and SOBBED

spoiler alert -- SHE had bought it for me for Xmas

I don't think she JUST said 
OH LOOK 
don't cry 
I got it for you
HERE ya go

I don't think she -- in fact I'm almost positive 
she did not -- WAIT to surprise me at XMAS

I think -- but I'm not positive 
she let me CRY 
then grieve
then
probably 
--  got sick of hearing about it 
and TOLD me

BUT 
for some reason 
my brain either thinks the details are important 
OR
it wants me to tell you about 
the music box
OR
the story*

*except I'm not sure of the story, so then it loops back